When Livvy was diagnosed with MLD in March of 2020, we were told the average life span is six years old. A year later, another little girl in Arizona who was diagnosed around the same time as Livvy passed away. We knew our moments were fleeting, time was precious and to treasure each day as if it were her last.

Fast forward to present day, and we just celebrated Livvy’s 5th birthday on May 21st. Surrounded by our family, we all sang Happy Birthday and I had to go into the kitchen afterward to wipe the tears away. What a miracle she has even made it to age 5.

In these past few years, she has accomplished so much for someone her age and with her diagnosis. And we hope to continue giving her a myriad of opportunities despite everything she has endured up to this point and may be going through in the future.

At year 5, here are some of Livvy’s favorite things:

– Listening to music and her music therapy sessions (the harp and chimes are her faves)

– Watching her sisters be silly

– Color: pink

– Watching the birds

– Going for walks

– Movies: Little Mermaid, Beauty & the Beast, Encanto, Luca

– Bubbles

– Odysea Aquarium (sharks, in particular)

– Car rides anywhere

– Funny noises

We’re so grateful to have her little spirit brightening our days and look forward to what the next year will hold for our girl. Happy Birthday, Livvy!