Dave. Kendra. Eva. Olivia. Keira.
Thanks for stopping by our blog and reading about our family’s journey. So many people – friends, family and strangers alike – have supported us through these troubling times and I wanted to create a space for everyone to continue along with us as we move to Italy for Keira’s treatment.
There is hardly any information available on the internet about Metachromatic Leukodystrophy (MLD) so not only do I hope our story can be a resource for other families, but I also hope to shed a light on the amazing work being done at San Raffaele Hospital in Milan, Italy. Many of the 30 other children in the world who have received this treatment before Keira are now living normal, happy lives – running, jumping, playing sports and going to school; things our middle daughter Olivia will unfortunately never get to do.
We feel so blessed to have this chance for her. Thank you for following along on our journey!