Yesterday, we got discharged from the hospital after a two-night stay for surgery to insert Keira’s Central Venous Catheter (CVC). This is required for the remainder of the upcoming treatment so they can not only insert the corrected stem cells but also administer chemotherapy, draw blood and give meds.
Thankfully, all went well with the surgery and she was soon back to her normal smiling self. The catheter doesn’t seem to bother her at all but the big bandage on top of it she wanted off ASAP.
Thankfully they removed it before we left and put on a different bandage that was much less bothersome.
Next up: another neuro and PT evaluation followed by being admitted for the gene therapy treatment at the end of the month! 🤗
2 thoughts on “Another Step Forward”
What a brave little one…so precious like her sisters! Prayers for all.
This is all so amazing, and Keira is such a doll, can’t believe her smiles, she is so precious!! Thank you for the wonderful updates. Prayers surround all of you, we give thanks for this great treatment and all the wonderful people involved. Love you all, Uncle Jim and Aunt Judy