Yesterday, we got discharged from the hospital after a two-night stay for surgery to insert Keira’s Central Venous Catheter (CVC). This is required for the remainder of the upcoming treatment so they can not only insert the corrected stem cells but also administer chemotherapy, draw blood and give meds.
Thankfully, all went well with the surgery and she was soon back to her normal smiling self. The catheter doesn’t seem to bother her at all but the big bandage on top of it she wanted off ASAP.
Thankfully they removed it before we left and put on a different bandage that was much less bothersome.
Next up: another neuro and PT evaluation followed by being admitted for the gene therapy treatment at the end of the month! 🤗